Ask the Expert: how do I ask for help now that my role has changed to an unpaid caregiver?

Expert Answer: As the population ages, the number of people affected by Alzheimer’s disease and other forms of dementia continues to rise. In turn, families increasingly find themselves providing unpaid care to loved ones with cognitive impairments. This caregiving role, though essential, comes with hidden personal, financial, and societal costs that can be substantial. In fact, a new study reveals that family caregivers of loved ones with dementia, if they were paid for their services, would be making six figures.

Unpaid family caregivers often provide a wide range of support for their loved ones with dementia. This may include assistance with daily activities such as bathing, dressing, and eating, as well as managing medications and medical appointments. They also may offer emotional support, companionship, and help with household tasks, ensuring their loved ones maintain a sense of dignity and comfort in their daily lives.

Caring for a loved one with dementia can be particularly stressful. Caregivers often experience emotional strain from witnessing their loved one’s decline, leading to feelings of sadness and helplessness. The physical demands of caregiving can result in exhaustion, while the constant need for vigilance can create anxiety. Balancing caregiving responsibilities with their personal life can further contribute to feelings of isolation and burnout.

Unpaid caregivers often face financial challenges as they balance caregiving responsibilities with their own employment and personal financial stability. Unpaid caregiving for older adults with Alzheimer’s and other forms of dementia is a deeply meaningful yet challenging responsibility.

Family caregivers of individuals with dementia can access a variety of resources designed to provide support, education, and respite. Here are some key resources available to help them navigate this challenging journey:

• Support Groups

• Educational Programs

• Respite Care Service 

• Online Resources 

• Financial Assistance Programs 

• Home Health Care Services 

• Legal and Financial Planning Resources 

By utilizing these resources, family caregivers can find the support they need to manage their responsibilities more effectively, ensuring both their well-being and that of their loved ones. Caregivers need to remember that they are not alone, and that help is available. A great place to start is with a life care planning law firm with elder care coordinators who can narrow down choices and resources based on your needs. Bottomline, if you find yourself in a caregiving role, reach out to professionals who will guide you through the options available to meet your unique needs and can help you plan for the future so that you avoid the burnout that is so common with caregivers.

For educational purposes only. This is not legal advice. Lisa Hostetler Brown is a Certified Elder Law Attorney certified by the National Elder Law Foundation. 10 Pinckney Colony Rd, Ste 400, Bluffton, SC 29909 | 843-757-5294 | HiltonHeadElderLaw.com